services which could support them. A new nurse is urgently needed to support Marie Haywood who currently covers all the clinics at RSH and PRH, as well as supporting inpatients.TheParkinson’sUKteamhavespentseveralmonthstryingtoworkwiththeTrusttogetinformationaboutthe situationbutwithoutsuccess.Aformalcomplaintwasthereforeraisedandaskedwhenthepostwillbeadvertised, whyithastakensolongandtimescalesaroundtherecruitmentprocess.Thecomplaintwasalsosenttothefive MPs covering the county.Followingthecomplaint,theTrustproposedameetingwhichwasattendedbyBranchCommitteeMembersMike McGillandTonyDay,alongwithDavidSwindellsAreaDevelopmentOfficerfromParkinson’sUK.Therewas recognitionthattheservicewasunderstaffedbutnoofferoffundingwasmade.Weawaitaformalresponseto our complaint.HealthWatch ShropshireThereissomeironyfollowingourfrustrationsaroundtheParkinson’sNurseSpecialistpostthatwearebeing asked: What would you do to make the NHS better in Shropshire? TheGovernmentisinvestinganextra£20bnayearintheNHSuntil2023.HealthWatchShropshireisaskingfor local views to help decide how that money should be spent in our local NHS. TheyareseekingideasandexperiencestohelpmakelocalhealthservicesbetterforeveryoneinShropshire including:How would you make it easier for people to take control of their own health and wellbeing?What would you do to make support better for people with long-term conditions?Formoreinformationanddetailsofthesurvey,visitwww.healthwatchshropshire.co.uk/what-would-you-doorcall the HealthWatch team on 01743 237884.Scrap prescription charges for Parkinson’sFor working-age people with Parkinson's, prescription charges are yet another hurdle they must contend with, and on 1 April 2019 prescription charges increase to £9. The medical exemption list, which determines who pays for prescriptions, is over 50 years old and is very out of date. It leaves out people with several long-term conditions that rely on medication to keep well, including Parkinson's. For more information about what Parkinson’s UK are doing to try to scrap prescription charges for Parkinson’s and what you can do, visit www.parkinsons.org.uk/news/prescription-charges-set-rise-ps9And finally, Fred’s thoughts...When you feel too old to do a thing – do it!